Rare Kids Need Rare IEPs

Are you ready to optimize your child's IEP?

As a rare disease parent, you have SO MANY stressors and responsibilities - your child's IEP shouldn't be one of them. I want to help you optimize your child's IEP in order for them to optimize their skills. There are times when it feels like nobody at school seems to understand that time and repetition are needed to make meaningful progress.

I get it. I've been there, too.

I can't wait to help you.

Imagine if...

You could breathe easy when sending ​your child to school.

You could stop dreading every ​interaction with school staff.

You slept better at night knowing your child was making meaningful progress at school, in the skills that matter the most for their future.

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Before you sit at the IEP table, here are some tips to help you feel more in control

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Pre-IEP Checklist!

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Hi, I'm Erin!

I remember the overwhelming feeling of my first IEP meeting. I never want you to feel that way!

With 5 years of experience navigating IFSP and IEP meetings for my own rare disease child, I've been able to help secure PT OT and Speech services needed to help our rare kids achieve a life of JOY AND INDEPENDENCE.

I'm a proud member of the Master IEP Coach® Network and I can't wait to help you on your IEP journey!

Cheering You On, Erin

What we can do together:

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We'll get started immediately on ​your biggest IEP concerns.

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Knowing how to clearly share your ​concerns is key. I'll show you how.

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Meeting Attendance

You'll never have to walk into a ​meeting alone, again.

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Trouble Shooting

I'll be here to help you every ​step of the way, so nothing feels ​out of control again.

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Text, Phone Calls, Google Meet, or Voxer. You get to pick how we work together!

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Your child's success and ​independence will

always​ be our focus.​

You'll finally be able to ​get all the IEP ​paperwork and emails ​unde​r​ control!

Does any of this

sound like you?

Do you get frustrated with not knowing what your child is doing all day at school?

Are you worried the amount of hours designated for your child's therapy services are enough to make progress given their developmental delay?

Do you want to be able to walk into your next IEP meeting with confidence and NOT have any surprises?

Do you want less meetings and more results?

That's exactly why we should work together!

Let's Talk!

I know trusting someone to help you with your child's IEP is a BIG deal.

Let's get to know each other to see if we're a good match.

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Stop losing sleep over ​IEP meetings!

Your child and your family need you for so many things. From deciding what's for dinner to scheduling therapy & doctors appointments, and running errands on a Saturday.

School struggles should not be stealing so much of your energy.

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COLLABORATION is key. I will help you build bridges with the IEP team, not burn them.

Data and research will ​be at the core of all your ​IEP decisions and ​requests​.​

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Together we'll get the ​school in sync with your​ family values to mee​t your ​c​hild's needs!


Mom and Son


3 Year Old Child

Thank you so much for helping me get through the IEP meeting and drafting all parent concern letters. It was super helpful! I loved that you were a STX mom and understood so much about our kids and their needs:)

Child with down Syndrome Sitting on Floor and Using Tablet with Grandmother at Home.


4 Year Old Child

Erin was able to take in a large amount of information about my son and his history in lightning speed and hone in on the exact concerns that we needed to address with the school. She gave me language and wording to help advocate for my son and a detailed but easy to follow plan with clear steps to take in order to secure necessary supports for him. And it all worked!

Mom and Son
Hugging mom


3 Year Old Child

Thank you for helping me feel prepared going into my daughter’s first IEP meeting. You showed us compassion and fully understood the struggles we experience. We are so lucky to have you helping us advocate for our sweet girl.

When we work ​together you will get:

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Email Support

I'll answer all your IEP questions ​within one business day.

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IEP Strategies that Work!

No more googling at 3am to figure ​out what you need to do next.

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Meeting Support

Maybe you need me at your meeting, maybe ​you don't. No matter if I'm simply helping you ​prep or sitting at the IEP table with you... ​you will never be alone!

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Let's Connect

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Helping RARE Parents Navigate Special Education

Services Available Nationwide Virtually or

In-Person in Philadelphia and surrounding counties

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IMPORTANT: I am not a lawyer and I do not give legal advice. All advocacy and IEP decisions are your own.